Aims
ASBAH works in partnership with people with
spina bifida and/or
hydrocephalus and their carers to achieve its aims as follows:
- To promote positive attitudes towards, and counter
discrimination against disabled people.
- To influence legislation and policy for the benefit of people
with spina bifida and/or hydrocephalus, their families and informal
carers, campaigning on issues and securing services commensurate
with their needs.
- To provide advisory, advocacy and other services to people with
spina bifida and/or hydrocephalus and their families.
- To provide information on and improve awareness of spina bifida
and hydrocephalus and to promote the primary prevention of neural
tube defects.
- To consult and listen to the views of people with spina bifida
and/or hydrocephalus in forming policies.
- To promote good practice and attitudes among those working with
and for people with spina bifida and/or hydrocephalus.
- To work with
local Associations by providing an active information service
and clear national policies on significant issues.
- To promote and fund research into the causes, effects,
prevalence and prevention of spina bifida and hydrocephalus, and
into effective education and treatment.
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Principles
- All measures should be founded on the explicit recognition of
the rights of disabled people.
- All people are to be regarded as of equal value.
- Disabled people should be involved in and consulted about any
decisions affecting their lives.
- All services should be designed to meet individual needs and
goals.
- All individual progress is relative to individual potential and
particular circumstances.
- ASBAH believes in co-operation and communication between all
those who work with and for people with spina bifida and
hydrocephalus, locally, nationally and internationally.
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