Related Links

The Hydrocephalus Support Association who are in NSW Australia can be emailed on: triplej@accsoft.com.au
The Spina Bifida and Hydrocephalus Assocation of South Australia
NIC - alt.support.spina-bifida A support group for people dealing with spina bifida.
The Hydrocephalus Foundation Aims to contribute emotional support to people with Hydrocephalus and their family.
Information in Polish about hydrocephalus and spina bifida.
Spina Bifida Dernegi (Spina Bifida Association of Turkey).
Pregnancy and Maternal Hydrocephalus Database
A moderated discussion emailing list for kids and youths of all ages with spina bifida
Fetal Diagnosis and Therapy at Vanderbilt University
The Spina Bifida and Hydrocephalus Association of Northern Alberta
The Spina Bifida Association of Quebec
A club for all whose lives have been touched by Spina Bifida and Spinal Cord Injuries with chat's, links, medical news updated daily, message board.
Jersey Association for Spina Bifida and Hydrocephalus
Swiss Federation of Spina Bifida and Hydrocephalus
Indian Spina Bifida Association
Spina Bifida UK - A Yahoo Club
Ryans Page - Ryan was born at 23 weeks with hydrocephalus.
Bristol and District Association for Spina Bifida and Hydrocephalus
Spina Bifida Social Centre This group has been created for people with Spina Bifida, or friends or relatives of people with SB to meet and have fun and regular chats.
Devon Association for Spina Bifida and Hydrocephalus
Spina Bifida and Hydrocephalus Association of Ontario

Disability - General
Helen's Homepages - the homepage of Helen Ross.
BEMA>D acts as a bridge between the Statutory Services and The Disabled Black and Ethnic Minority in the community.
Dis-ability.info is an online resource for disabled people.
Whizz-Kidz is a national charity that provides customised mobility equipment to disabled children and young people to increase their independence and improve the quality of life for them and their families.
Disable Jobsite assists people with a disability to participate actively in employment. Our services play a critical role in assisting disabled people on the pathway to work.
Free Disabled Dating - disabled dating and chatrooms.
News of Independent Living events around the country.
The Disability Rights Commission (DRC) is an independent body set up by the Government to help eliminate discrimination against disabled people and to promote equality of opportunity. The site contains a significant amount of campaign and resource information.
Treloar's provides education, independence training, therapy and opportunities for over 300 physically disabled young people from all over the UK.
Westsussexcarers is an independent website set up by ICIS for Social and Caring Services, West Sussex County Council, to provide support to carers
Parents Power are a support organisation for disabled parents and their families in Bexley.
The website of the British Epilepsy Association.
The essp parents' library for deaf children.
The Fetal Treatment Center at UCSF Children's Hospital diagnoses and treats birth defects, usingʡdvanced therapies including fetal surgery.
Vips-in-SEN features a mix of comprehensive information to help parents and has a campaigning edge for improving provision in special educational needs.
Problemshare - provides a confidential way of sharing one's problems and receiving feedback from others who've have been through similar experiences.
Keytools - supply specialist computer equipment for people with a large range of disabilities.
Children's Health Information Centre - Queen's Medical Centre, Nottingham. Information about the Queen's Medical Centre and a wide range of parent information leaflets.
Recoverypages.com - aims to bring all disabilities together.
Fusion 4 - a Nottinghamshire website for children and young people with disabilities and their families.
Capability Scotland is the country's largest disability organisation. They provide a broad range of services to adults and children with physical and/or learning disabilities and campaign for equal rights.
CareandHealth is the on-line resource for professionals in social care.
Disabled Workers Co-operative aims to promote the skills, services and products offered by disabled workers by creating a searchable (by anyone looking for whatever they need) database of these skills and services.
Wearable Clothing a leading designer and manufacturer of clothing for people with disabilities of all kinds but especially for wheelchair users.
Adapt-IT supply computer aids for people with disabilities.
Toys for children with disabilities - lots of toys for you to make.
Disabledunited.com Included on the site is a unique Friends and Dating facility, chat room and message forums.
emPowernet A large database of information about disability issues and campaigns
RADAR (Royal Association for Disability and Rehabilitation)
Disability Now the UK's most comprehensive archive of disability information
Disability Net
The Disability Resource claims to have a search engine with every disability related link on the internet.
Ability - lots of links
Reachout Magazine - A meeting place for people with disabilities (includes a live chat area).
Through the Looking Glass (TLG) is a nationally recognized non-profit agency and first National Resource Center for Parents with Disabilities.ʠThey provide direct services, training, materials and research concerning families in which a child, parent or grandparent has a disability or medical issue.
British Wheelchair Sports Information about wheelchair sports in Great Britain.
Disability related web sites
Baxley Media Group Videos on disabilities and special education, also a range of videos concerning health and human relations
Self Help and Support Groups A guide to groups in the UK and overseas.
Accessible Vacation Home Exchange - a free service by the Institute on Independent Living.
Information on health and social services for the residents of the London Borough of Wandsworth
Healthlinkusa Information on a wide range of health links
Special Needs issues in Great Britain
Institute on Independent Living
A consortium of disablement charities
DisabilityWorld A lot of information about disability sites
http://www.surgerydoor.co.uk/ A UK Health Portal
http://www.hemihelp.org.uk/ Provides information to children with hemiplegia and their families
http://www.disabledinfo.com/ Provides information for disabled people, their families and carers, who are looking for help, advice or shopping requirements.
Skill National Bureau for Students with Disabilities promotes equality of opportunity for disabled people in post 16 education, training and employment.
A resource site for teachers of children with special educational needs
Kingston Special Needs Project aims to foster a greater understanding of the requirements of children with Special Needs
Cheshire Oaks Wheelchair Tennis Club The club was formed to promote Tennis for people with Disabilities
http://www.focusondisability.co.uk/ A site with general information on disability
CanDo.com An online resource and global lifestyle destination for the universal community with disabilities and their support circles
A medical encyclopaedia
eMedical A general medical information site.
largeprint.org dedicated to the access needs of children with visual impairment.
U Can Do I.T. - Wigram Aid to Ability for Critically-disabled Internet Students. WAACIS is a Charity that helps disabled people by providing computer training on how to use the Internet in their own homes at an affordable cost.
Help line telephone numbers organised by county.
http://www.medicdirect.co.uk/ A free, interactive website which provides a complete health information resource for both consumers and medical practitioners.
anAurora is the new ezine for the disAbled woman in the 21st century.
WELDIS is the Westminster Information Service for Older People and People with Disabilities.
Family Friendly Fun and Life Resources offers access to mind, body and spirit-enriching information that enhances the quality and enjoyment of family life with special needs.
Greater London Action on Disability (GLAD) is a pan-London organisation which campaigns for the rights of disabled Londoners and provides advice, information and training.
Disability Central a site for teenagers.
http://www.diss.org.uk/ designed to provide people with a straight forward search facility to find key organizations.
The Kathleen Digby Web Site - Kathleen is an Independent educational Consultant, specialising in physical disability.
Disability Action Yorkshire - The aim of Disability Action Yorkshire is to enable service users to live their life as independently as possible.
UK Self Help Groups - A wide ranging directory giving telephone numbers and web addresses.
Nurses Network - Information for Nurses in the UK.
astepforward - a community and informational site that also hopes to campaign for a better image and access for disabled people of all ages and ability.
Wheelchair Children run group and individual wheelchair-skills events training for manual and powered wheelchair users.
Kennedy Krieger Institute is an internationally recognized facility dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training.
Evas Tourist Apartments - wheelchair accessible apartments in Cyprus.

Other Links
Babyloss is a UK resource for anyone who has been touched by the loss of a baby, at any stage during pregnancy, or just after birth.
http://www.forparentsbyparents.com/ looks at all the life changing elements of parenthood, even the grim bits!! Through the sharing of personal experiences, parents offer support, reassurance, information, ideas and practical solutions.
Birth Centre website has been developed as a tool for health professionals, women who are considering pregnancy or who are already pregnant and seeking evidence based advice on health and birth options, and journalists working in the health sector.
Bullying Online helps parents and pupils deal with school bullying.
Tethered Cord Resources: A Personal Story, A UK Resource.
Action Without Borders A listing of over 8,000 nonprofit websites.
Emotional Support Resources A guide to emotional support resources on the internet.
Glaxo Neurological Centre
National Council for Voluntary Organisations
The Baby Registry UK parenting and pregnancy site.
Darrell's Home Page Information, and links, about latex allergy.
Columbia Medical Manufacturing Basic positioning, bathroom and other supports - international dealer list.
The Passport to Health Directory
Parents with Disabilities Online Lots of useful links, information and Parents-Chat listserver.
"Buster" A comic strip with a disabled person as it's lead character, finding humour in disability.
The Educator - an online magazine for the professional in education.
Birtenshaw Hall School is a day and residential, non-maintained special school for pupils/students aged 3-19 years
MediSearch allows people to search for 'authoritative' health information
Parents Online a web site to help parents through their childrens primary school years
Jubilee Sailing Trust a charity that aims to promote the integration of able-bodied and disabled people through the adventure of tall ship sailing
Physiobase.com is a community website designed for those associated with or interested in the physiotherapy profession.
TagTeacherNet is the online community that supports teachers' professional and personal lives.
A website for Cerebellar stroke victims
Gowrings Mobility - manufacturer and supplier of wheelchair accessible cars and people-carriers.
You and Your Child - A large amount of child and pregnancy related information provided by Tescos.
http://www.isbi.com/ - a directory of all 3,000 independent and boarding schools in Britain, plus all residential special schools.

Home Pages of People with Spina Bifida and/or Hydrocephalus and Their Families
Charlotte's Site - Charlotte's progress including photos and videos.
Stephen Drake's home page - a person with hydrocephalus who is a disability rights activist.
Susete's home page Information about Susete's son Andrew and some interesting links.
Simon Allanach's home pages Simon's interests and information about hydrocephalus.
Shannon Russell's home pages
Spina Bifida Central A chat room, message board and links.
Benign Intracranial Hypertension Information, personal story, and links.
community.webtv.net/StealthKnight/Lifefrommy/
Sarah's Story
A diary of events concerning Emily born August 2000
A special story about a 'normal' guy in the Netherlands.
The SB Center Message Boards.